Never was picked up from respite, yes relinquishment is still happening

Over 50 families relinquish their children with a disability in Victoria every year is a very sad statistic. (Victorian Equal Opportunity & Human Rights Commission Report Desperate Measures-May 2012)

These kids are normally in their late teens, as they transition from school to “where to from here?”

It’s really important that we keep this topic alive, because it’s not going away.

The Desperate Measures Report mentions 23 potential risk factors for relinquishment, and I’ll put it out there & say, it wouldn’t be hard to add extra 10 in this current climate.

The key point to remember is that the National Disability Insurance Scheme was never attended to be a “fix for all”

I’m suggesting that greater engagement with the “new blood” coming into existing professions such as counsellors and social workers needs to happen.

Innovative organisations like “Microboards” could also be considered in some cases, look at their website for more information.

Relinquishment was suggested to my parents when I was born, by a nurse who said “there are special places for babies like this.”My mother quickly replied, “I know, its our home…”

“Choice & Control”, not just a NDIS slogan

The movie “Me before You” I enjoyed it.

At the end of the day it was a humorous love story where a guy who had quadriplegia and his carer fell in love.

It made me laugh and cry, that’s why I go to the movies.

Being born with a disability, I would often look at others who had acquired their’s & think to myself, they need to toughen up & stop being so bitter towards themselves and others.

I remember telling “Superman” (Christopher Reeves) how disappointed I was with him after his presentation at the Fox Studios in Sydney when he told everybody

“He would rather be dead than remain in a wheelchair on a ventilator”

“Me before You” is being criticised big time on Facebook as a “Pity Party” sending out negative perceptions of people with disabilities.

In reality, everybody handles their own disability in their own way.

There are the elite go-getters and at the other end you have those who struggle every day.

We need more “Disruptive” movies like “Me before You” that challenges peoples’ perception about disability.

I support “Choice and Control” when it comes living or not with your disability.

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Do Board Members “Get” the NDIS ?

Following on from my last post about NDIS readiness for disabilities professionals, there is a very important group of people that need to have a better understanding about the NDIS than they do.

I’m referring to Boards and Board members of not-for-profit organizations.

A lawyer colleague of mine, Geoff Donovan and I are delivering a seminar on the Board’s leadership role in the new NDIS world for disability service providers.

Time : 5-6 pm Wednesday 25th of May 2016

Location : Purpose Law Level 17, 31 Queen Street Melbourne

Cost : $65.00  (plus GST & booking fee)

BOOK EVENT : https://www.eventbrite.com/e/is-your-board-ndis-ready-tickets-24383010240

Promotional Video

Geoff’s legal expertise is in the area of “Good Governance” with a particular focus on Directors duties for community and corporate organisations.

I will be giving my views looking through the “participants” lens.

As I have been a governance member on a number of boards I believe the NDIS will challenge some board members in understanding a different way of thinking which is now required as we move from a welfare model to an insurance model.

Leadership by the Board is crucial in these times of transformational change in the disability sector which requires a definite mindset shift by Board members.

When I encourage people to embrace “choice and control” when choosing a provider, I suggest that they look closely at 3 aspects.

  1. Does their board really understand the NDIS?
  2. What is the culture of the organisation?
  3. Are people with disabilities represented with in the organisation?

NDIS Insurance pic