Wheel Chair to Wheel Chair, with Tim Ferguson

Humour & Disability, an interesting mix.

It was great chatting with Tim Ferguson on a range of things, like humour, attitudes, employment & NDIS.

He’s a funny guy of course, a well-known comedian.

Tim was diagnosed with MS at the age of 19 & has an interesting take on Disability.

By chance, after meeting with Tim, I had the opportunity to have a quick chat with Todd Sampson, if you don’t know him, where have you been?

Never was picked up from respite, yes relinquishment is still happening

Over 50 families relinquish their children with a disability in Victoria every year is a very sad statistic. (Victorian Equal Opportunity & Human Rights Commission Report Desperate Measures-May 2012)

These kids are normally in their late teens, as they transition from school to “where to from here?”

It’s really important that we keep this topic alive, because it’s not going away.

The Desperate Measures Report mentions 23 potential risk factors for relinquishment, and I’ll put it out there & say, it wouldn’t be hard to add extra 10 in this current climate.

The key point to remember is that the National Disability Insurance Scheme was never attended to be a “fix for all”

I’m suggesting that greater engagement with the “new blood” coming into existing professions such as counsellors and social workers needs to happen.

Innovative organisations like “Microboards” could also be considered in some cases, look at their website for more information.

Relinquishment was suggested to my parents when I was born, by a nurse who said “there are special places for babies like this.”My mother quickly replied, “I know, its our home…”

“Choice & Control”, not just a NDIS slogan

The movie “Me before You” I enjoyed it.

At the end of the day it was a humorous love story where a guy who had quadriplegia and his carer fell in love.

It made me laugh and cry, that’s why I go to the movies.

Being born with a disability, I would often look at others who had acquired their’s & think to myself, they need to toughen up & stop being so bitter towards themselves and others.

I remember telling “Superman” (Christopher Reeves) how disappointed I was with him after his presentation at the Fox Studios in Sydney when he told everybody

“He would rather be dead than remain in a wheelchair on a ventilator”

“Me before You” is being criticised big time on Facebook as a “Pity Party” sending out negative perceptions of people with disabilities.

In reality, everybody handles their own disability in their own way.

There are the elite go-getters and at the other end you have those who struggle every day.

We need more “Disruptive” movies like “Me before You” that challenges peoples’ perception about disability.

I support “Choice and Control” when it comes living or not with your disability.

images